Principal Investigator: Jeremy Shefner, MD, PhD

Disease: ALS

Project Duration: 18 months

Primary Aim(s):

  • Aim 1: The primary objective of the study is to obtain deep phenotyping information on 150 ALS patients studied at regular intervals over 18 months, in conjunction with biofluid collection over that same time period.
  • Aim 2: The secondary objectives of this study are to integrate data from this study to other ongoing projects via the NEALS biorepository, and with future collections that are currently planned.

How CIB accelerates this project:

CIB operates as the data coordination core.
Platforms used: NeuroBANK™, NeuroGUID