News & Events

Latest & Greatest News

  • March 8, 2018 - The CIB team flew to Baltimore to take part in the Answer ALS annual meeting.
  • December 8, 2017 - The CIB team attended the 28th Annual International ALS/MND Symposium. Our team and our collaborators used data from NeuroBANK™ or PRO-ACT for many platform and poster presentations.
  • October 4, 2017 - The CIB team presented 6 BIG Data related posters and held the Big Data Committee Meeting at the NEALS annual meeting in Clearwater, FL.
  • April 25, 2017 - First NeuroBANK™ User-Group Meeting
  • December 5, 2016 - The NeuroBANK™ team traveled to Dublin, Ireland to attend the 27th Annual International ALS/MND Symposium. Our team and our collaborators used data from NeuroBANK™ or PRO-ACT for many platform and poster presentations.
  • October 6, 2016 - The NeuroBANK™ team presented 7 BIG Data related posters and held the first Big Data Committee Meeting at the NEALS annual meeting in Clearwater, FL.
  • September 30, 2016 - The NeuroBANK™ team, in collaboration with Principal Investigator, Steve Greenberg, MD, PhD has been awarded an NINDS grant to support the Vascular Contributions to Cognitive Impairment and Dementia (VCID) driven by cerebral Small Vessel Disease (SVD) Network.
  • September 23, 2016 - Boston, MA - Alex Sherman presented on "Big Data in Rare Diseases" at the MGH Rare Disease Think Tank
  • August 29, 2016 - Albany, NY - Alex Sherman provides update on NeuroBANK™ Projects at the ALS Finding a Cure Investigators Meetings 
  • August 4, 2016 The ALS Association in Partnership with and Massachusetts General Hospital, announced its $3.6 Million Investment to Expand the NeuroBANK™ Program. Read the full article here.
  • July 7, 2016 - NeuroBANK™ attends the the 14th International Congress on Neuromuscular Diseases in Toronto Canada. 
  • June 20, 2016 - Principal Investigator Sabrina Paganoni, MD, PhD, was featured in the MGH Giving Campaign -- Dr. Paganoni shares, “Our patients are our partners in our search for a cure for this disease. With their help, we can make a big impact."
  • June 13, 2016 - Principal Investigator, Richard Bedlack, MD from Duke University’s ALS Clinic and his NeuroBANK™ study "ALS Reversals - Lunasin Regimen" were featured in the Wall Street Journal.
  • June 8, 2016 - NeuroBANK™ enjoys NCRI Bowling Night in Boston!
  • May 20, 2016 - NeuroBANK™ reaches 100 followers on Twitter!! Follow Us
  • May 18, 2016 - NeuroBANK™Team travels to Milan, Italy to attend the 2016 European Network for the Cure of ALS (ENCALS) Conference Program 
  • May 11, 2016 - NeuroBANK™ Team travels to Baltimore to attend the Emerging & Translational Biology of Leukodystrophies. Join us via Live Stream: http://theglia.org/live-stream/ 

 

Publications

    • Miller, Timothy et al. "Defining SOD1 ALS natural history to guide therapeutic clinical trial design." J Neurol Neurosurg Psychiatry 2016 Jun 3.
    • Bedlack, Richard S. et al. “How Common Are ALS Plateaus and Reversals?”Neurology 86.9 (2016): 808–812. PMC. Web. (article)
    • Küffner, Robert et al. "Crowdsourced analysis of clinical trial data to predict amyotrophic lateral sclerosis progression" Nature Biotechnology 33 (2015): 51–57. (article)
    • Zach, Neta et al. “Being PRO-ACTive: What Can a Clinical Trial Database Reveal About ALS?” Neurotherapeutics 12.2 (2015): 417–423. PMC. Web. (article)
    • Atassi, Nazem et al. “The PRO-ACT Database: Design, Initial Analyses, and Predictive Features.” Neurology 83.19 (2014): 1719–1725. PMC. Web. (article)
    • Sherman, Alex et al. "Proposed BioRepository platform solution for the ALS research community"
      Amyotrophic Lateral Sclerosis.12.1 (2011). (article)