UMN Registry

Principal Investigator: Sabrina Paganoni, MD PhD

Disease: ALS

Project Duration: 3 years

Primary Aim(s):

  • Aim 1: The goal of this project is to develop a Pure Upper Motor Neuron Disease (UMND) Registry by identifying the location, demographics, and functional status of patients with either early UMND or Primary Lateral Sclerosis (PLS).

How CIB accelerates this project:

CIB operates as the data coordination core.
Platforms used: NeuroBANK™, NeuroGUID