Managing Privacy in Research Data Repositories

After the Dataverse Community Meeting, a workshop focused on tools helping open repositories currently addressing sensitive or private data will be held at Harvard Medical School. This workshop is a collaboration between the Dataverse team and the Privacy Tools for Sharing Research Data group.

July 13th

See Detailed Agenda

Room: Cannon Room, Building C, Harvard Medical School

10:30 - 10:45am Registration and Coffee

10:45 - 11:00am Welcome, slides
Salil Vadhan, Professor of Computer Science and Applied Mathematics, Harvard University

11am - 12:30pm Panel Discussion on Privacy Risks
Moderated by Salil Vadhan, Professor of Computer Science and Applied Mathematics, Harvard University

George Church, Professor of Genetics at Harvard Medical School and Director of

Kobbi Nissim, Center for Research on Computation and Society, Harvard University

Danny Weitzner, Principal Research Scientist, CSAIL, MIT

Danny Goroff, VP and Program Director, Alfred P. Sloan Foundation

12:30 - 1:30pm Lunch break

1:30 - 3:30pm Solutions: Software Tools for Managing Privacy
Moderated by Mercè Crosas, Chief Data Science and Technology Officer, IQSS, Harvard University

Data Handling Policies: Spaces, DataTags, and the Tags Language, slides
Michael Bar-Sinai

Robot Lawyers: Automating Legal Compliance for Transferring Private Data, slides
Steve Chong, Associate Professor of Computer Science , Harvard University

PSI (Ψ): A Private data Sharing Interface, slides
James Honaker, Senior Research Scientist, Harvard University

Web-based Multi-Party Computation with Application to Anonymous Aggregate Compensation Analytics 

Azer Bestavros, Professor of Computer Science, Boston University

A Software Architecture Proposal to facilitate Privacy Auditing in a confidential Data Enclave
Cavan Capps, Big Data Lead, United States Census Bureau

3:30 - 4:00pm Coffee Break

4:00 - 5:00pm Panel Discussion on Managing Sensitive Data Use Cases
Moderated by David O'Brien, Senior Researcher at the Berkman Klein Center for Internet & Society at Harvard University

Barbara Brierer, MD., Faculty Co-Director, Multi-Regional Clinical Trials (MRCT) Center of Harvard and Brigham and Women’s Hospital
Director, Regulatory Foundations, Ethics and the Law Program, Harvard Catalyst, Harvard Medical School
Professor of Medicine, Harvard Medical School, Senior Physician, Division of Global Health Equity, Department of Medicine, Brigham and Women's Hospital

Kaye Marz, Research Associate II, National Addiction and HIV Data Archive Program (NAHDAP), Inter-university Consortium for Political and Social Research

Simson Garfinkel, Senior Advisor, Information Access Division, National Institute of Standards and Technology (NIST)

5:00 - 6:00pm Panel Discussion on International Data Flows
Moderated by Deborah Hurley

Deborah Hurley, Adjunct Professor of the Practice of Computer Science, Department of Computer Science, Brown University

Peter Doorn,  Director of Data Archiving and Networked Services (DANS)

David Heiner, Vice President & Deputy General Counsel at Microsoft Corporation, slides

6:00pm Concluding Remarks and Reception